Project: Heppy - Healthcare: Parents Pathways
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CONTEXT
In defining the strategies for taking care of people affected by chronic pathologies, it is assuming a growing importance the choice of combining the medical assistance provided to the patient in Hospital and the assistance at home, according to a perspective of permanent and continuous care.
Many humanities branches of studies - history, medical anthropology, sociology, and literature- help to enlarge understanding of the human experience and human cultures, including how cultures understand and deal with death, health and disease- and how cultural beliefs, biases, and needs are reflected in the structure of medical practice. Humanities, including theatre, narrative medicine1 and literature and medicine, also help to develop empathy and compassion for patients.
The humanities and arts provide insight into the human condition, suffering, personhood, our responsibility to each other, and offer a historical perspective on medical practice. Attention to literature and the arts helps to develop and nurture skills of observation, analysis, empathy, and self-reflection -- skills that are essential for humane medical care. The social sciences help us to understand how bioscience and medicine take place within cultural and social contexts and how culture interacts with the individual experience of illness and the way medicine is practiced.
In this context two approaches gain importance:
- Narrative medicine, in which the patient assume and plays an important role by providing information about himself that the professional carer can use to improve the service provided.
- “Methodology of parents’ pedagogy” that recognise to the parents a crucial role to guide the carers and the doctors in acknowledging the personal story of the patient.
The project intends provide professionals Health carers that are committed to give assistance to patients with chronic pathologies, the skills to apply the 2 above mentioned approaches so to understand the complexity of the personal story of their patient
In this context two approaches gain importance:
- Narrative medicine, in which the patient assume and plays an important role by providing information about himself that the professional carer can use to improve the service provided.
- “Methodology of parents’ pedagogy” that recognise to the parents a crucial role to guide the carers and the doctors in acknowledging the personal story of the patient.
The project intends provide professionals Health carers that are committed to give assistance to patients with chronic pathologies, the skills to apply the 2 above mentioned approaches so to understand the complexity of the personal story of their patient
OBJECTIVES
- Develop and share, at European level, a better knowledge in a comparative perspective of the transnational state of art in the application of the concepts and methodologies of Narrative medicine, Methodology of parents’ pedagogy and their role in the concrete application of the International Classification of Functioning, Disability and Health (ICF) in the specific working environment.
- Collection of the narrative case studies making to Narrative medicine and Methodology of parents’ pedagogy in according to ICF in the database of the project
- Define and propose a common European profile of competences and skills for the professionals health carers as far of the Home assistance of patients with chronic diseases, concerning the humanising and the improving the relationship with the patient through an holistic comprehension of the personal characteristics of the patient, the parents then the relatives.
- Develop a multidisciplinary e-learning based training package aimed at teaching the application of Narrative Medicine and Methodology of parents’ pedagogy to the different professionals working in all the fields that affect and are affected in the organisation of holistic health care services: Territorial Social Services, Professional and Hospital based medical assistance, Home care assistance, Economic sustain and job counselling, Training of professionals at university level and Training of professionals care givers at post University/Vocational Training level
TARGET GROUPS
- Define and propose a common European profile of competences and skills for the professionals health carers as far of the Home assistance of patients with chronic diseases, concerning the humanising and the improving the relationship with the patient through an holistic comprehension of the personal characteristics of the patient, the parents then the relatives.
- Develop a multidisciplinary e-learning based training package aimed at teaching the application of Narrative Medicine and Methodology of parents’ pedagogy to the different professionals working in all the fields that affect and are affected in the organisation of holistic health care services: Territorial Social Services, Professional and Hospital based medical assistance, Home care assistance, Economic sustain and job counselling, Training of professionals at university level and Training of professionals care givers at post University/Vocational Training level
TARGET GROUPS
Professionals health carers: At least 180 Professionals health carers will directly benefit from the project results.
In each of the 6 countries at least 30 trainers will be involved for testing the training package and participating to the Virtual Community
Patients and their families: At least 50 patients, together with their families will benefit directly from the project results.
REZULTS
The results will be a Database collecting the e-forms that each partner will use for reviewing the main publications available addressing the 3 methodologies object of the project: Narrative medicine, Parents pedagogy and International Classification of Functioning, Disability and Health.
Each publication will be described through its bibliographical reference, an abstract and a comment of the partner.
The information will be provided in English and in the national language.
The information will be provided in English and in the national language.
The partners will analyse through common criteria, the main experiences of health assistance, studying it from the point of view of all the actors involved: Hospital, care givers, patient and relatives.
Each case study review will be available in English and in national language.
Collection of the forms with which the partners will describe the best practices identified among the case studies analysed.
The Best practice will be identified and described by the partners according to homogeneous criteria defined by the Guidelines for identification and description of best practices.
The Best practice will be used as point of reference for developing the training course
Each case study review will be available in English and in national language.
Collection of the forms with which the partners will describe the best practices identified among the case studies analysed.
The Best practice will be identified and described by the partners according to homogeneous criteria defined by the Guidelines for identification and description of best practices.
The Best practice will be used as point of reference for developing the training course
Each National report will describe the country situation as emerged from the research carried out. Reports will be available in English and in national language.
The transnational report will summarise and compare the information of the National reports in order to highlight common tendencies and main differences.
The Report will be translated in all the languages.
The transnational report will summarise and compare the information of the National reports in order to highlight common tendencies and main differences.
The Report will be translated in all the languages.
The final results of the research activity will be a transnationally defined profile of the skills and knowledge that a Health carer assisting patients with disabilities and /or chronic diseases, should have in order to take into consideration and manage effectively the combination of aspects, social, economic, cultural that affect its needs. These profile will be proposed to the Health Sector community for being validated.
LITHUANIAN MULTIPLE SCLEROSIS UNION
We are the Lithuanian Multiple Sclerosis Union (LMSU), which was founded in 2000 with the help of the Danish Multiple Sclerosis Society.
From 2002, the Organisation is a member of the European MS Platform.
From 2007 we became a member of Euro carer association.
The Organisation also is one of the initiator in the founding of the Baltic MS Alliance.
We unite appr.1000 people but represent the interests of almost 4000 affected people and are helping to solve their problems.
We co-ordinate the activities of 8 societies in the country’s largest cities and district centres.
The LMSU main Office is at A. Jaksto g. 9, Vilnius and employs 3 people: the chairman of the board, the secretary general, and the chief financial officer.
Its areas of activity include social and psychological consultation, representation of patient interests in all state institutions, and the implementation of international projects. (For more , see the projects)
Multiple sclerosis is a fundamental neurological illness with a high morbidity, especially among people at a young age of employable morbidity 20-40 years of age.
An attempt is of made to conceal the illness from not only employers but also those close to the person. Disability is rapid and severe.
Since 2000, the date of registration of its activity, LMSU has done a great deal for the benefit of patients suffering from multiple sclerosis. The Union’s activity directly affects indicators of patients’ treatment and their quality of life by means of lobbying events and meetings with local administrations. It is It is not without efforts made by the Organisation that everybody who needs pharmaceutical treatment is provided with it. The state provides 100% compensation for this treatment.
With the aim of helping to remove bureaucratic obstacles and other hindrances related to the social conditions of patients, various political and social campaigns and events were arranged over the last five years.
In other words, we are able to help people which do not require large financial recourses: e.g. the organisation of seminars, the founding of small fitness schools, the establishment of self-help groups, and, of course, providing information, education, and training to use the latest computer hardware and software.(see the projects)
We are doing a lot in fundraising for all the work currently being performed in order to improve the lives of people suffering from multiple sclerosis and to realise ideas as well as for maintaining the office and employees.
This is a public non profitable organisation. Its maintenance and its activities are supported only by the amount support and charity it receives..
Secretary General Aldona Droseikiene
Lithuanian Multiple Sclerosis Union
The Hippocrates Project
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INTRODUCTION
The current European social-economic situation requires individuals who work in the fields of training and in particular in the field of health training to re-consider their role, expanding the previous concept of “training for a specific role” towards a more ample and complex vision which allows for the consolidation of the ability to “manage one’s own skills” in order to respond to the continual evolution of the social-environmental factors and therefore of training needs.
In this context the following needs concerning the professional figure of the trainer emerges:
1. Ability to identify gaps in one’s knowledge with regard to Knowledge Management in the health sector
2. Ability to identify the best strategies used for Knowledge Management, in particular in the health sector
3. Acquisition of skills with regard to Knowledge Management methodology
4. Possibility of sharing one’s own understanding and training methodologies
AIMS
In order to respond to these needs the project aims to:
1. Identify the knowledge gaps of trainers in the health sector with regard to Knowledge Management methodology
2. Share, by an online database, the best practice carried out by trainers with regard to Knowledge Management in the health sector
3. Provide trainers who work in the health sector with the necessary skills to manage effectively their knowledge , to allow them to update systematically their competence and if possible foreseeing the evolution of their context of reference. This will be done by means of a specific “online training path”
4. Promote the sharing of skills and experiences of trainers in the health sector at European level through an effective exchange of experience among professionals .
BENEFICIARIES
1. Experts in the field of training trainers in the health field, identified by the partners to fulfil needs analysis, to research best practices and to develop “the training path” package that will benefit from items made during these activities and projects. They will also be able to meet with European colleagues bearers of different experiences from theirs;
2. Trainers in the health field that will be involved in the different project phases and the first to be involved in the knowledge management process , being themselves protagonist testing the package implemented training.
ACTIVITIES
The following activities will be carried out:
1. Self-Analysis of the trainers training needs to identify which skills/ Knowledge/ competence/abilities the trainers in the health field have vs. they should possess (competence gap) to effectively perform their job, considering the environment evolution which they have to integrate and assure .
2. Role competence profile, discussed and defined by some “experienced trainers focus groups” who share and compare needs, experiences, problems.
3. Creation of a database of best practice in Knowledge Management framework, to provide trainers a wide range of the existing Knowledge Management methods and tools specifically applied in health field.
4. Development and test of a training package for trainers in the health field, using all the information achieved, based upon the Knowledge Management methodology and the relevant dynamic tool which will be fulfilled, using the approved Role Profile.
5. Creation of a virtual community to share experiences, difficulties , documents, references, etc…
RESULTS
The main tangible result of the Hippocrates projects will be the project portal which will contain:
-the results of the needs analysis,
-the database of best practice,
-the training course on Knowledge Management method specifically designed and adapted for trainers in health field,
-the virtual community of trainers.
PARTNERS
1) HOSPITAL “GRADENIGO” OF THE “CONGREGAZIONE DELLE FIGLIE DELLA CARITA’ DI SAN VINCENZO DE’ PAOLI” – Italy
Promoting the Project Hippocrates. It is a non-profit agency specializing in health services. It promotes and manages the training of health personnel in collaboration with external institutions (Universities, Scientific Societies etc)
2) STATNI ZDRAVOTNI USTAV - National Institute of Public Health - Czech Republic
3) BUPNET - Training and Project Network ltd. - Germany
4) PIXEL Association - Italy
5) EASY TECHNOLOGIES srl – Italy
6) LIETUVOS IŠSETINES SKLEROZES SAJUNGA - Lithuanian Multiple Sclerosis Union - Lithuania
7) POLITECHNIKA KOSZALINSKA - Koszalin University of Technology - Poland
The current European social-economic situation requires individuals who work in the fields of training and in particular in the field of health training to re-consider their role, expanding the previous concept of “training for a specific role” towards a more ample and complex vision which allows for the consolidation of the ability to “manage one’s own skills” in order to respond to the continual evolution of the social-environmental factors and therefore of training needs.
In this context the following needs concerning the professional figure of the trainer emerges:
1. Ability to identify gaps in one’s knowledge with regard to Knowledge Management in the health sector
2. Ability to identify the best strategies used for Knowledge Management, in particular in the health sector
3. Acquisition of skills with regard to Knowledge Management methodology
4. Possibility of sharing one’s own understanding and training methodologies
AIMS
In order to respond to these needs the project aims to:
1. Identify the knowledge gaps of trainers in the health sector with regard to Knowledge Management methodology
2. Share, by an online database, the best practice carried out by trainers with regard to Knowledge Management in the health sector
3. Provide trainers who work in the health sector with the necessary skills to manage effectively their knowledge , to allow them to update systematically their competence and if possible foreseeing the evolution of their context of reference. This will be done by means of a specific “online training path”
4. Promote the sharing of skills and experiences of trainers in the health sector at European level through an effective exchange of experience among professionals .
BENEFICIARIES
1. Experts in the field of training trainers in the health field, identified by the partners to fulfil needs analysis, to research best practices and to develop “the training path” package that will benefit from items made during these activities and projects. They will also be able to meet with European colleagues bearers of different experiences from theirs;
2. Trainers in the health field that will be involved in the different project phases and the first to be involved in the knowledge management process , being themselves protagonist testing the package implemented training.
ACTIVITIES
The following activities will be carried out:
1. Self-Analysis of the trainers training needs to identify which skills/ Knowledge/ competence/abilities the trainers in the health field have vs. they should possess (competence gap) to effectively perform their job, considering the environment evolution which they have to integrate and assure .
2. Role competence profile, discussed and defined by some “experienced trainers focus groups” who share and compare needs, experiences, problems.
3. Creation of a database of best practice in Knowledge Management framework, to provide trainers a wide range of the existing Knowledge Management methods and tools specifically applied in health field.
4. Development and test of a training package for trainers in the health field, using all the information achieved, based upon the Knowledge Management methodology and the relevant dynamic tool which will be fulfilled, using the approved Role Profile.
5. Creation of a virtual community to share experiences, difficulties , documents, references, etc…
RESULTS
The main tangible result of the Hippocrates projects will be the project portal which will contain:
-the results of the needs analysis,
-the database of best practice,
-the training course on Knowledge Management method specifically designed and adapted for trainers in health field,
-the virtual community of trainers.
PARTNERS
1) HOSPITAL “GRADENIGO” OF THE “CONGREGAZIONE DELLE FIGLIE DELLA CARITA’ DI SAN VINCENZO DE’ PAOLI” – Italy
Promoting the Project Hippocrates. It is a non-profit agency specializing in health services. It promotes and manages the training of health personnel in collaboration with external institutions (Universities, Scientific Societies etc)
2) STATNI ZDRAVOTNI USTAV - National Institute of Public Health - Czech Republic
3) BUPNET - Training and Project Network ltd. - Germany
4) PIXEL Association - Italy
5) EASY TECHNOLOGIES srl – Italy
6) LIETUVOS IŠSETINES SKLEROZES SAJUNGA - Lithuanian Multiple Sclerosis Union - Lithuania
7) POLITECHNIKA KOSZALINSKA - Koszalin University of Technology - Poland